Responsible Information Sharing Talk: Takeaway

I attended Elaine Sedenberg’s talk Responsible and Privacy-Preserving Cybersecurity Information Sharing Using Public Health as a Model.  This talk was part of the Security/Privacy Track at the 2016 Grace Hopper Celebration.  Elaine is a doctoral candidate at UC Berkeley.

At Jefferson I work with PHI and was interested to see how that experience might help with cybersecurity.  In the opening keynote, Dr. Lateesha Sweeney spoke about her experiment using released public health records and voter registration data to re-identify a de-identified patient.  Ultimately her work contributed to HIPAA which defines what is private data and how it can be shared.  What can be learned from HIPAA and applied to cybersecurity in general?

The state of cybersecurity when it first emerged was: a lot of information was available and there weren’t many rules for what to share, with whom or how.  The Cybersecurity Info Sharing Act (SISA) provided guidelines.

Ultimately, I’m quite glad I made it to this talk.  I thought it would be more technical but it turned out to be about policy.  I liked having the history and state of data-sharing explained.  To boil it down, Sedenberg tells us that in protecting public health, we learned to

  1. begin with goals
  2. emphasize data minimization
  3. coordinate activities
  4. foster voluntary sharing
  5. aim to maximize the sharable data responsible

General cyberdata is similar to health data because its protection is a public good and not all data is generated or controlled by the government. Companies and organizations who collect this data need to be incentivized to share it and share it responsibly.

 

 

 

Roe v. Wade Has Been Overturned. You Have Every Right to Be Upset. Here’s how to take action

We at AnitaB.org, are disheartened and dismayed by the United States Supreme Court's decision to overturn Roe v. Wade, a landmark ruling that enabled the right of an abortion to people around the nation. AnitaB.org brings together allies and champions across every sector to advance intersectional gender equity in technology. The technologists we support are also people impacted by targeted oppressive and unjust laws including laws that restrict reproductive rights. Not only do we empower technologists through our year-long programming but, we also advocate for better systemic solutions for the workforce and for their humanity. 

In response to the Supreme Court ruling, we are joining to elevate the calls to action of our social justice colleagues and community partners. 

If you feel called to do something today or in the next coming days, here are some action steps:  

  • Support and donate to Repro Legal Defense Fund, which is a national organization that covers bail and funds strong defense for people who are investigated, arrested, or prosecuted for abortion. Because no one should be behind bars for ending their pregnancy or helping someone else do so.
  • Support and donate to Plan C, an educational resource for learning about how people in the US access abortion pills.
  • Support and donate to your local Planned Parenthood, independent abortion clinics, and abortion funds.
  • Go to the streets and join a protest near you. Most protests are happening today at 5 PM at the federal courthouses or state capitols.

AnitaB.org is also launching a political advocacy series, Power to the People, with our first event on July 20th. The first event of this series, Power to People: Abortion Rights and Digital Privacy, will elevate the voices of abortion advocates and the risks emerging with digital rights and privacy. This event will empower you to take additional action regarding abortion rights and data privacy. Stay tuned for more information about this upcoming event. 

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